UDNF E-News

Read the December E-News Highlights Advancing Hope: A Year of Research Progress in Undiagnosed and Ultra-rare Diseases Until Rare is Not a Barrier: How Your Donation Helps Help Make the Impossible Possible

Read the November E-News Highlights Undiagnosed. Ultra-rare. United. UDNF Community Events 2024 Wrap-up The UDNF public statement for the FDA Rare Disease Innovation Hub Celebrating Cargivers Month with Jessica Patay from We Are Brave Together

Read the September E-News Highlights Undiagnosed. UIltra-rare. United. UDNF Community Events Patient Navigator Program Highlights

Read the August E-News Highlights In this month’s e-news: Learn why obtaining a diagnosis is so challenging for those with medical mysteries, the UDNF participates at the NINDS Nonprofit Forum, and the announcement of our participation in the Librarey ambassador program.

Read the July E-News Highlights In this month’s e-news: The UDNF at the Bio International Convention, Patient Navigator Program highilights, and a mom’s story of balancing the needs of her healthy children while caring for her child with a chronic illness. 

Read the May E-News Highlights For Mother’s Day, we wanted to honor and recognize moms who are facing the unknown. We asked moms in our UDNF community to share how living with an undiagnosed or ultra-rare disease has shaped their journey through motherhood. Inside this

Read the April E-News Highlights Undiagnosed Day Events Rare Disease Day Wrap-Up Exciting News About UDN Funding

Read the March E-News Highlights Navigating Ultra-rare Diseases and How the UDNF Helps February Together on Tuesdays Wrap-up: What is a Patient Navigator? Upcoming Events

Read the November E-News Highlights UDNF Live Online Event Update on Patient Navigation Program Sign Up for E-News Giving Tuesday is Coming Up Soon! Let’s Make the Impossible Possible