News and Events

Press Releases

Meet Our New CEO

Statement on Rare Disease Day, Research and Funding

Undiagnosed Diseases Network Foundation (UDNF) Launches Patient Navigation Program

UDN PEER and UDNF Integrate Efforts to Strengthen Voice of UDN Participants

Undiagnosed Diseases Network Foundation Strategic Plan 2023-2025

Connect, Learn, and Inspire at the RARE Advocacy Summit

Upcoming Events

Registration is Open – Undiagnosed Exchange

Community Councils Update

UDNF Undiagnosed Day 2026

Book Launch – Everything No One Tells You About Parenting a Disabled Child

What is Palliative Care, REALLY?

Tell Me More: Why is Obtaining a Diagnosis Challenging?

UDNF Monthly E-News

UDNF December 2024 E-News

UDNF November 2024 E-News

UDNF September 2024 E-News

UDNF August 2024 E-News

UDNF July 2024 E-News

UDNF May 2024 E-News

PEER Quarterly Newsletter

UDNF October 2024 E-News

UDNF PEER Newsletter – June 2024