Events

April 29, 2026 We invite you to our Undiagnosed Day 2026 on Wednesday, April 29th at 12:30 p..m. ET. The UDNF will celebrate Undiagnosed Day 2026 on April 29 with a virtual event to share knowledge, build community, and take action. It is time for us to

March 22, 2024 We invite you to our next UDNF Lecture Series on Friday, March 22nd at 12:00 p..m. ET for Meeting Unmet Needs: UDN Peer Meets the UDNF. Our goal is to make these sessions informative and interactive, to give you a chance to

August 22, 2024 We invite you to our book launch of Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports on Thursday, August 22nd  at 12:00 p..m. ET. Everything No One Tells You About Parenting a Disabled Child:

September 3, 2024 We invite you to our next UDNF Together on Tuesdays series on Tuesday, September 3rd  at 12:00 p..m. ET for What is Palliative Care, REALLY?  What is Palliative Care REALLY? What is palliative care, REALLY? Hospice care? Concurrent care? Too often, these

July 11, 2024 We invite you to our next UDNF Tell Me More Lecture Series on Thursday, July 11th  at 12:00 p..m. ET for Why is Obtaining a Diagnosis Challenging? – Navigating the Uncharted Waters of an Ultra Rare Disease. Are you an undiagnosed patient

April 29, 2024 Post Event Update On April 29th, 2024, the Wilhelm Foundation, the Undiagnosed Diseases Network Foundation (UDNF), and Undiagnosed Diseases Network International (UDNI), hosted the Undiagnosed Day 2024 Event at Harvard Medical School. Presentations from Global experts highlighted the great work being done

April 2, 2024 We know that all parents want their children to have access to an education.  We invite you to be Together on Tuesday, April 2 at 12:00 p..m. ET for IEPs and 504 Plans: A Education Primer to get your questions answered so