April 29, 2024 The Undiagnosed Day, hosted by the Wilhelm Foundation, the Undiagnosed Diseases Network Foundation (UDNF), and Undiagnosed Diseases Network International (UDNI), will include presentations from Global experts highlighting the great work which is being done across the globe focusing on improving the diagnostic
Read the April E-News Highlights Undiagnosed Day Events Rare Disease Day Wrap-Up Exciting News About UDN Funding
Read the March E-News Highlights Navigating Ultra-rare Diseases and How the UDNF Helps February Together on Tuesdays Wrap-up: What is a Patient Navigator? Upcoming Events
Read the November E-News Highlights UDNF Live Online Event Update on Patient Navigation Program Sign Up for E-News Giving Tuesday is Coming Up Soon! Let’s Make the Impossible Possible
March 22, 2024 We invite you to our next UDNF Lecture Series on Friday, March 22nd at 12:00 p..m. ET for Meeting Unmet Needs: UDN Peer Meets the UDNF. Our goal is to make these sessions informative and interactive, to give you a chance to
April 2, 2024 We know that all parents want their children to have access to an education. We invite you to be Together on Tuesday, April 2 at 12:00 p..m. ET for IEPs and 504 Plans: A Education Primer to get your questions answered so
February 6, 2023 We’re excited to announce that we’ll be hosting a live online event on Tuesday, February 6th at 12:00 pm eastern for all patients and families living with undiagnosed or ultra-rare diseases. The focus of the meeting will be Patient Navigation at the
December 6, 2023 We’re excited to announce that we’ll be hosting a live online event on Wednesday, December 6th at 3 pm eastern for all patients and families living with undiagnosed or ultra-rare diseases. UDNF: At the Intersection of Impossible Stories and Possible Solutions This