Read the November E-News HighlightsUndiagnosed. Ultra-rare. United. UDNF Community Events 2024 Wrap-upThe UDNF public statement for the FDA Rare Disease Innovation HubCelebrating Cargivers Month with Jessica Patay from We Are Brave Together...
Read the September E-News Highlights Undiagnosed. UIltra-rare. United. UDNF Community Events Patient Navigator Program Highlights ...
/*! elementor - v3.23.0 - 05-08-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the August E-News HighlightsIn this month’s e-news: Learn why obtaining a diagnosis is so challenging for those with medical mysteries, the UDNF participates at the NINDS Nonprofit Forum, and the announcement of our participation in...
/*! elementor - v3.23.0 - 05-08-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the July E-News HighlightsIn this month’s e-news: The UDNF at the Bio International Convention, Patient Navigator Program highilights, and a mom’s story of balancing the needs of her healthy children while caring for her child...
/*! elementor - v3.21.0 - 22-05-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the May E-News HighlightsFor Mother’s Day, we wanted to honor and recognize moms who are facing the unknown. We asked moms in our UDNF community to share how living with an undiagnosed or ultra-rare disease...
/*! elementor - v3.20.0 - 10-04-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the April E-News HighlightsUndiagnosed Day EventsRare Disease Day Wrap-UpExciting News About UDN Funding...
/*! elementor - v3.20.0 - 26-03-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the March E-News HighlightsNavigating Ultra-rare Diseases and How the UDNF HelpsFebruary Together on Tuesdays Wrap-up: What is a Patient Navigator?Upcoming Events...
/*! elementor - v3.20.0 - 26-03-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the November E-News HighlightsUDNF Live Online EventUpdate on Patient Navigation ProgramSign Up for E-NewsGiving Tuesday is Coming Up Soon!Let's Make the Impossible Possible...