16 Dec UDNF December 2024 E-News
Read the December E-News HighlightsAdvancing Hope: A Year of Research Progress in Undiagnosed and Ultra-rare DiseasesUntil Rare is Not a Barrier: How Your Donation HelpsHelp Make the Impossible Possible...
UDNF E-News
21 Nov UDNF November 2024 E-News
Read the November E-News HighlightsUndiagnosed. Ultra-rare. United. UDNF Community Events 2024 Wrap-upThe UDNF public statement for the FDA Rare Disease Innovation HubCelebrating Cargivers Month with Jessica Patay from We Are Brave Together...
12 Sep UDNF September 2024 E-News
Read the September E-News Highlights Undiagnosed. UIltra-rare. United. UDNF Community Events Patient Navigator Program Highlights ...
20 Aug UDNF August 2024 E-News
/*! elementor - v3.23.0 - 05-08-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the August E-News HighlightsIn this month’s e-news: Learn why obtaining a diagnosis is so challenging for those with medical mysteries, the UDNF participates at the NINDS Nonprofit Forum, and the announcement of our participation in...
20 Aug UDNF July 2024 E-News
/*! elementor - v3.23.0 - 05-08-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the July E-News HighlightsIn this month’s e-news: The UDNF at the Bio International Convention, Patient Navigator Program highilights, and a mom’s story of balancing the needs of her healthy children while caring for her child...
23 May UDNF May 2024 E-News
/*! elementor - v3.21.0 - 22-05-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the May E-News HighlightsFor Mother’s Day, we wanted to honor and recognize moms who are facing the unknown. We asked moms in our UDNF community to share how living with an undiagnosed or ultra-rare disease...
15 Apr UDNF April 2024 E-News
/*! elementor - v3.20.0 - 10-04-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the April E-News HighlightsUndiagnosed Day EventsRare Disease Day Wrap-UpExciting News About UDN Funding...
01 Apr UDNF March 2024 E-News
/*! elementor - v3.20.0 - 26-03-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the March E-News HighlightsNavigating Ultra-rare Diseases and How the UDNF HelpsFebruary Together on Tuesdays Wrap-up: What is a Patient Navigator?Upcoming Events...
01 Apr UDNF November 2023 E-News
/*! elementor - v3.20.0 - 26-03-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the November E-News HighlightsUDNF Live Online EventUpdate on Patient Navigation ProgramSign Up for E-NewsGiving Tuesday is Coming Up Soon!Let's Make the Impossible Possible...