Strengthening existing relationships and creating new connections in the undiagnosed and ultra-rare community, our in-person events aim to foster meaningful relationships where patients and families feel they belong.  If you are a patient, family or community member that lives with or supports someone who has an ultra-rare condition, you are invited!  Come as you are, you are welcome!

Event Date: October 26, 2024
Time: 10 a.m. – 2 p.m. CT
Location: The Health Museum, 1515 Hermann Drive, Houston, Texas 77044

We hope you’ll join us on October 26th!

Registration for the event is free and open to everyone. To register, please visit the UDNF Registration Page.