Webinar Recordings

UDNF Webinars

9 Videos

Advancing Hope and Breakthroughs in Undiagnosed and Ultra-Rare Diseases

1:39:23

Growing up Together: Recognizing and Supporting Siblings of the Undiagnosed & Ultra-rare

57:01

Together on Tuesday What is Palliative Care Really?

56:43

Book Launch – Everything No One Tells You About Parenting a Disabled Child

Why is Obtaining a Diagnose Challenging?

Together on Tuesdays: IEPs and 504 Plans An Education Primer

Tell Me More: Meeting Unmet Needs: UDN Peer Meets the UDNF

57:45

Together on Tuesdays: Introduction to the Patient Navigation Program

UDNF: At the Intersection of Impossible Stories and Possible Solutions

39:57