20 Aug Undiagnosed. Ultra-rare. United. UDNF Community Event at Washington University
UDNF Community Event at WashU Center of Excellence
If you are a patient or family caregiver of someone who has been searching for their diagnosis, are yet undiagnosed or have an ultra-rare disease, then this event is for you. If you are a clinician or looking for referral sources for your patients that you are caring for, then this event is for you. From 10 a.m. to 2 p.m., clinicians and researchers from the WashU Center of Excellence will speak about the lates in diagnostics and research while having time to hear stories and meet with others who live in your community and face similar challenges.
Event Date: October 5, 2024
Time: 10 a.m. – 2 p.m. CT
Location: Delmar Devine Building, 5535 Delmar Blvd, St. Louis, Missouri 63112
We hope you’ll join us on October 5th!
Registration for the event is free and open to everyone. To register, please visit the UDNF Registration Page.