02 Oct UDNF October 2024 E-News
Read the October E-News HighlightsUndiagnosed. UIltra-rare. United. UDNF Community EventsHeartfelt letters written by current and past UDNF PEER members...
Author: Tech Admin
24 Sep Together on Tuesdays: Growing up Together: Recognizing and Supporting Siblings of the Undiagnosed & Ultra-rare
Growing up Together: Recognizing and Supporting Siblings of the Undiagnosed & Ultra-rare Join us on Tuesday, November 12th at 12:00 p.m. Eastern Time as we explore the challenges siblings experience, from feeling overlooked to finding the balance between their own needs and those of their brother...
12 Sep UDNF September 2024 E-News
Read the September E-News Highlights Undiagnosed. UIltra-rare. United. UDNF Community Events Patient Navigator Program Highlights ...
20 Aug UDNF August 2024 E-News
/*! elementor - v3.23.0 - 05-08-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the August E-News HighlightsIn this month’s e-news: Learn why obtaining a diagnosis is so challenging for those with medical mysteries, the UDNF participates at the NINDS Nonprofit Forum, and the announcement of our participation in...
20 Aug UDNF July 2024 E-News
/*! elementor - v3.23.0 - 05-08-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the July E-News HighlightsIn this month’s e-news: The UDNF at the Bio International Convention, Patient Navigator Program highilights, and a mom’s story of balancing the needs of her healthy children while caring for her child...
20 Aug Undiagnosed. Ultra-rare. United. UDNF Community Event at Washington University
UDNF Community Event at WashU Center of Excellence If you are a patient or family caregiver of someone who has been searching for their diagnosis, are yet undiagnosed or have an ultra-rare disease, then this event is for you. If you are a clinician or looking...
20 Aug Undiagnosed. Ultra-rare. United. UDNF Community Event at Baylor College of Medicine
UDNF Community Event at Baylor College of Medicine If you are a patient or family caregiver of someone who has been searching for their diagnosis, are yet undiagnosed or have an ultra-rare disease, then this event is for you. If you are a clinician or...
12 Jul UDNF PEER Newsletter – June 2024
Posted at 09:24h
in PEER Quarterly Newsletter
/*! elementor - v3.22.0 - 26-06-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} Read the June E-News A Note from the Editor In our June Newsletter we are excited to highlight the UDN Site at University of Alabama at Birmingham (UAB). We welcome you to read articles from Bruce Korf,...
30 Jun Book Launch – Everything No One Tells You About Parenting a Disabled Child
/*! elementor - v3.23.0 - 15-07-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} /*! elementor - v3.23.0 - 15-07-2024 */ .elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}August 22, 2024 We invite you to our book launch of Everything No One Tells You About Parenting a Disabled Child: Your Guide to the...
25 Jun What is Palliative Care, REALLY?
/*! elementor - v3.22.0 - 24-06-2024 */ .elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=".svg"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block} /*! elementor - v3.22.0 - 24-06-2024 */ .elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}September 3, 2024 We invite you to our next UDNF Together on Tuesdays series on Tuesday, September 3rd at 12:00 p..m. ET for What...