Events

Research Webinar Join us for an engaging research webinar presented by the Undiagnosed Diseases Network (UDN) and the Undiagnosed Diseases Network Foundation (UDNF), where we will highlight progress in the field of undiagnosed and ultra-rare diseases. This webinar will showcase research advancements, including case studies

Growing up Together: Recognizing and Supporting Siblings of the Undiagnosed & Ultra-rare Join us on Tuesday, November 12th at 12:00 p.m. Eastern Time as we explore the challenges siblings experience, from feeling overlooked to finding the balance between their own needs and those of their

UDNF Community Event at WashU Center of Excellence If you are a patient or family caregiver of someone who has been searching for their diagnosis, are yet undiagnosed or have an ultra-rare disease, then this event is for you.  If you are a clinician or

UDNF Community Event at Baylor College of Medicine If you are a patient or family caregiver of someone who has been searching for their diagnosis, are yet undiagnosed or have an ultra-rare disease, then this event is for you.  If you are a clinician or

March 22, 2024 We invite you to our next UDNF Lecture Series on Friday, March 22nd at 12:00 p..m. ET for Meeting Unmet Needs: UDN Peer Meets the UDNF. Our goal is to make these sessions informative and interactive, to give you a chance to

August 22, 2024 We invite you to our book launch of Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports on Thursday, August 22nd  at 12:00 p..m. ET. Everything No One Tells You About Parenting a Disabled Child:

September 3, 2024 We invite you to our next UDNF Together on Tuesdays series on Tuesday, September 3rd  at 12:00 p..m. ET for What is Palliative Care, REALLY?  What is Palliative Care REALLY? What is palliative care, REALLY? Hospice care? Concurrent care? Too often, these

July 11, 2024 We invite you to our next UDNF Tell Me More Lecture Series on Thursday, July 11th  at 12:00 p..m. ET for Why is Obtaining a Diagnosis Challenging? – Navigating the Uncharted Waters of an Ultra Rare Disease. Are you an undiagnosed patient

April 29, 2024 Post Event Update On April 29th, 2024, the Wilhelm Foundation, the Undiagnosed Diseases Network Foundation (UDNF), and Undiagnosed Diseases Network International (UDNI), hosted the Undiagnosed Day 2024 Event at Harvard Medical School. Presentations from Global experts highlighted the great work being done

April 2, 2024 We know that all parents want their children to have access to an education.  We invite you to be Together on Tuesday, April 2 at 12:00 p..m. ET for IEPs and 504 Plans: A Education Primer to get your questions answered so