Advancing Hope and Breakthroughs in Undiagnosed and Ultra-Rare Diseases​

Advancing Hope and Breakthroughs in Undiagnosed and Ultra-Rare Diseases​

Research Webinar

Join us for an engaging research webinar presented by the Undiagnosed Diseases Network (UDN) and the Undiagnosed Diseases Network Foundation (UDNF), where we will highlight progress in the field of undiagnosed and ultra-rare diseases. This webinar will showcase research advancements, including case studies on both diagnosed and undiagnosed conditions, while emphasizing the role of patient support and collaboration in achieving diagnostic breakthroughs.

Featuring presentations by leaders in the field – including Christine McGarvey (MS), Dr. Cole, Dr. Kathleen Sullivan, Erica Shindewolf (MS, LCGC), Dr. Robert Bucelli, Dr. Hugo Bellen, Michele Herndon (MSN, RN), Dr. Matthew Might, and Dr. Meghan Halley – you’ll gain valuable insights into research priorities and therapeutic innovations that are driving the future of diagnosis and treatment. Don’t miss this opportunity to engage with the community, learn about cutting-edge initiatives, and find out how you can contribute to ongoing advancements.  

Once registered, you will receive a unique link to watch the webinar on Giving Tuesday, 12/3/2024, and help us continue to advance hope for all those impacted by undiagnosed and ultra-rare diseases. 

How to Register:

Registration for the event is free and open to everyone. To register, please visit the Research Webinar registration page.