UDNF Live Online Event: UDNF: At the Intersection of Impossible Stories and Possible Solutions

We’re excited to announce that we’ll be hosting a live online event on Wednesday, December 6th at 3 pm eastern for all patients and families living with undiagnosed or ultra-rare diseases. UDNF: At the Intersection of Impossible Stories and Possible Solutions

This will be the first of many monthly events we will hold on topics that you have told us are important to you! As part of this first monthly meeting, we will share more about our Foundation’s vision for building a community for all undiagnosed and ultra-rare disease participants and families, and you’ll also have the opportunity to meet our new leadership team and ask us questions.

Looking forward to 2024, we’ll be hosting a variety of sessions on topics such as genetic testing and counseling, navigating your diagnostic journey, transitioning from pediatric to adult care, and more. Our goal is to make these sessions informative and interactive, to give you a chance to learn more about our programs and services as we are preparing to launch them, and to actively invite you to share your feedback and ideas with us along the way. 

We hope you’ll join us for this first event on December 6th! It’s a great opportunity to learn more about the UDNF, to connect with other community members, and to have your voice heard.

How to Register:

Registration for the event is free and open to everyone. To register, please visit the UDNF Live Event Registration by Monday, December 4th.

We can’t wait to see you there!

All the best,

Amy Gray
CEO
Undiagnosed Disease Network Foundation