Undiagnosed Diseases Network Foundation Strategic Plan 2023-2025

Dear Friends and Supporters:

It is with great enthusiasm and a deep sense of purpose that I introduce to you our Strategic Plan for the years 2023 to 2025. 

Our mission is clear: to improve access to diagnosis, research, and care for all individuals with undiagnosed and ultra-rare conditions. The UDNF has emerged as a beacon of hope and support for patients, families, clinicians, and researchers navigating the challenging landscape of undiagnosed and ultra-rare diseases.

Our strategic plan is built on the foundation of compassion, empathy, and respect, values that guide every decision we make. As we embark on this journey, we are committed to addressing the unmet needs of our community and creating an environment where no patient or family faces the unknown alone.

As we move forward social equity will be a core value that underpins all our efforts. We are dedicated to ensuring that historically marginalized communities have equal access to diagnosis, research, care, and therapeutics. Together, we will work tirelessly to combat structural inequities and promote fairness and inclusivity both for and within the rare disease community.

I extend my heartfelt gratitude to the diverse group of stakeholders who have contributed to the development of this strategic plan. Patients, families, scientists, clinicians, and partners have all played a pivotal role in shaping our direction, and I am inspired by their dedication and passion.

In closing, I want to emphasize that this strategic plan is a living document, one that will evolve with the changing needs of our community. Together, we will create a brighter future for undiagnosed and ultra-rare disease patients, where they are no longer alone in their journey. With your support, the UDNF will be a source of strength, knowledge, and hope for all those who seek answers. Thank you for your unwavering commitment and support.

Sincerely,

Meghan Halley, Ph.D.
President, Board of Directors
Undiagnosed Disease Network Foundation