The Undiagnosed Exchange
About The Undiagnosed Exchange
The Undiagnosed Exchange is a virtual, facilitated, small group intended to provide support and education for persons or caregivers going through a diagnostic odyssey. There is no fee associated with participating in this group. The facilitators have both been through a diagnostic odyssey and they will lead the group in discussions and breakout sessions and provide take-home practice to assist in coping skills and self-care.
This group is designed to be supportive and educational. It is not a source of medical advice, diagnosis, or clinical care. The facilitators are mental health professionals who bring their training, lived experience, and compassion to this group; however, they are not providing personal therapy or professional mental health services. If you have medical or therapeutic concerns, please continue to contact your healthcare providers directly.
Who Can Join?
The group is only for persons who are 18 years of age or older. It is a group for both adults with an undiagnosed disease or an adult caregiver.
Group Guidelines
Group boundaries and rules of engagement will be shared at the beginning of each meeting. Your attendance at the meeting is acknowledgement of your intent to follow the group boundaries and rules.
The UDNF is not responsible for any communication between group members that occurs outside of the scheduled meeting times.
Meeting Schedule
Meeting Dates: The group will meet every other week virtually on Wednesdays from 11-12 EST. The first meeting will be on February 18, 2026. There will be 8 sessions over a 16-week period. This is the first Undiagnosed Connection group offered by the UDNF and registration will be limited. If you are not able to participate in this first group, there will be future offerings.
Feedback and Attendance
You will be asked to complete a survey upon registration and at the completion of the 8 sessions. This survey is optional, however it is very important for us to receive your feedback to improve our future groups. We understand that life can be unpredictable, but we ask that you do your best to attend most or all sessions to help maintain the group’s connection and rhythm.
Acknowledgement
**By completing this registration form below and by attending the virtual meetings, you are acknowledging that you have read and agree with the information in this form.
If you would like to register to join The Undiagnosed Exchange, please complete the register below. You will receive a confirmation email with more instructions on the meeting dates and Zoom link information.