Together on Tuesdays: February 6th

We’re excited to announce that we’ll be hosting a live online event on Tuesday, February 6th at 12:00 pm eastern for all patients and families living with undiagnosed or ultra-rare diseases. The focus of the meeting will be Patient Navigation at the UDNF: Meet the Navigators and Familiarize Yourself with our Resources.

Throughout 2024, we’ll be hosting a variety of sessions on topics such as genetic testing and counseling, navigating your diagnostic journey, transitioning from pediatric to adult care, and more. Our goal is to make these sessions informative and interactive, to give you a chance to learn more about our programs and services as we are preparing to launch them, and to actively invite you to share your feedback and ideas with us along the way. 

We hope you’ll join us on February 6th! It’s a great opportunity to learn more about the UDNF and our Patient Navigators

How to Register:

Registration for the event is free and open to everyone. To register, please visit the UDNF Live Event Registration

We can’t wait to see you there!

All the best,

Amy Gray
CEO
Undiagnosed Disease Network Foundation