The UDNF is proud to introduce Indigo the Bunting, a symbol created by and for the undiagnosed community. We know that for those of you still searching for answers - still navigating tests, specialists, symptoms that do not fit neatly into one box - it...
At UDNF, we're committed to transforming the lives of individuals affected by undiagnosed and ultra-rare diseases. Our research strategy prioritizes:Accelerated Diagnosis: Providing rapid and accurate diagnostic tools to ensure timely identification of these complex conditions.Innovative Research: Driving groundbreaking research to develop effective treatments and cures.Equitable...
I prefer to start my story from the end, because who doesn’t like a happy ending. Right? Or at least an ending in which the bad guy doesn’t win. I enjoy life with my service dog Sophie, spending winters in tropical Colombia and summers on...